EB Research Partnership is creating a campaign with outdoors sports brands and water sports communities to raise awarness and funds to #HealEB.
Together with these iconic brands and major influencers, we will promote co-branded apparel and gear. Cause the Wave will be a movement that helps us cure a devastating disease.
EB Research Partnership (EBRP) is the largest nonprofit dedicated to funding research at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
We work with the world’s leading researches to develop game-changing therapies and cures. We have raised over $8 million to support the transformational science that will heal EB and potentially thousands of other diseases.
Water is one of the few envrionments that will not damage the fragile skin of people with EB. In water, they are fully empowered.
The American, European and Australian sports markets are valued at more than $144 billion. Less than .001% could be enough for a cure.